Camp date: Aug 10th - Aug 12th to be held at Riverbend Retreat, Glen Rose, TX
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2012 is off to a running start and we have set goals that are sure to enhance the quality of all lives affected by Prader-Willi Syndrome. Join us & help make them happen! Once you register with this site, you can goto the TXNetwork to post comment/questions or goto the TXPWA Membership link to become a full member & get connected today! We do consider giving free memberships ($25 annual fee) to those who can not afford one. You do need to register with this site first to get started. To register, click here.
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Register Online Now! Camp Dates: Friday, August 10th thru Sunday August 12th
If you have recently received a diagnosis of PWS for your child, please click here to learn more. Newly Diagnosed page
Are you interested in a residential home that caters specifically to those with PWS? We have good news! There is a new PWS specific home opening within Texas! The provider is looking for several more ladies with PWS to become their newest residents. This home is an HCS home, therefore you must already have HCS funding for your person with PWS or be able to obtain HCS funding by means of switching from the current program your person with PWS already falls under.
Thanks to all who worked so hard to make our 1st TX PWA "People with Smiles" camp a huge success. With lots of planning, the camp was a safe and fun experience for those with PWS.
A group of Stony Point High School International Baccalaureate and Health Science Academy students are hosting a One SMALL Step event for Prader-Willi Syndrome Research at Old Settler's Park in Round Rock, Texas on Sunday, October 2. The goal is to promote health and fitness for all children. We are expecting 200+ people to attend the run/walk. In addition to the run/walk, we will have entertainment for the whole family, including a DJ, bounce house, firetruck, face painting, etc. We would also like to have booths set up for organizations/companies to share information about their products/services that tie into our focus...health and fitness for all children. If you know of any organizations/businesses in our area that might be willing to help out with our event, or set up an information booth, please let me know right away. The students have an event page set up on Facebook...Greater Austin Area One SMALL Step 5K Run/1K Walk. Here is a link to our online fundraising page: http://onesmallstep.fpwr.org/dw/walking/location/51 Your help is greatly appreciated, Stephanie
The final figures are in for the First Annual Molly's Pub Charity Golf Tournament benefitting Texas Prader Willi Association, held on May 23rd. We raised $23.487.00!!! We are so thrilled and very grateful to everyone. We're hoping next year will be even bigger and better. We are looking forward to it! I want to sincerely thank everyone who participated, played, bought a raffle ticket, donated to the auction....whatever....it all added up. It was a fantastic day and I am so excited to have raised this kind of money to benefit our children with this challenging disorder. Sincerely, June Finnerty
ATTENTION ALL: The TPWA is hosting it's first Prader Willi Camp for person's with PWS only. Date - August 27 & 28, 2011. Place - Riverbend Retreat, Glen Rose, Texas. Since this is our first year we are doing a trial run and accepting only 15 campers this year. WE CURRENTLY ONLY HAVE 2 MORE SPOTS OPEN! Each camper will have their own 1:1 counselor with them throughout the weekend. There are plenty of handicap accessible activities we have planned for our camper's that Riverbend Retreat offers such as swimming, an inflated floating rock climbing wall and the ever so popular ZIP LINE that is handicap accessible! We don't want to give out all of our plans but I can promise you one thing, it's going to be a GREAT time!!! All food will be secured at all times. We are thankful to have found such a wonderful camp location that has been more than willing to work with us. We'd love to have you join us!! Yee Haw Y'all !!! Please contact Cheri Wood at 903-520-5178 if you're interested.
Trevor was invited to participate in the 2011 Cy-Fair Technology festival. He made a 30 second video about where animals live. He also pick the music to play while the slide show went. He picked the Bomm bomm bomm booooooomm song as he puts it (Beethoven 5th). He played his video from 6-6:30 on January 27, 2011. Trevor was so very excited. He sat behind the table and just smiled and said HI to people he knew. We are so very proud of him. After the show Trevor and I had our dinner date. It was an amazing evening. Very proud parents and sister, Robin, Tony and Rebecca
KHOU Channel 11 News in Houston, TX did a short news piece on Prader Willi Syndrome this week. The piece features TXPWA members the Lang's and their son Trevor who is 8. Read more for video link.